RESEARCH
Boston Children's Hospital - Dr. Warman will continue genetic research for CLOVES, and CLOVES with Wilms Tumor. He will also be working to: develop a CLOVES mouse, develop a test to determine if someone has CLOVES, and in the future discuss working to develop medication to control the overgrowth through our CLOVES groups and/or the pharmaceutical companies. If you are a CLOVES patient and are interested in participating in his CLOVES studies,
Please contact us at Cl[email protected] for further information
Our team in Boston has started a Lymphatic Anomalies Registry. For more information click the following link: Children's Hospital Lymphatic Anomalies Registry
Research Links:
Boston CLOVES Research Documentation
8/11 research update
6/12 - Boston Children's research team has found the genetic marker responsible for CLOVES Syndrome
5-31-12_CLOVES Press_Release
Somatic Mosaic Activating Mutations in PIK3CA Cause CLOVES Syndrome
2012_CLOVES_Supplement
