PUBLISHED PAPERWORK & IMPORTANT LINKS

 

Date

Description/Link

5-30-12

Somatic Mosaic Activating Mutations in PIK3CA Cause CLOVES Syndrome

5-24-12

Phenotypic progression of skeletal anomalies in CLOVES syndrome

1-2011

WT1-Related Wilms Tumor (WT) Syndromes | The Children's Hospital of Philadelphia

8-2011

What is a gene mutation and how do mutations occur?

3-2011

Sirolimus for the treatment of complicated vascular anomalies in children

3-2011

Here is a link to the video of our conference in Boston on 3-19-2011. This video wraps up Dr. Alomari's discussion and shows Dr. Warman's discussion about the proposed research

2-2011

Complex spinal and paraspinalfast flow lesions - in Cloves Syndrome

11-2010

Webcast from Brussels (International Soceity for the Study of Vascular Anomalies) about CLOVES

11-2010

Perinatal clinical and imaging features of CLOVES syndrome

4-2010

Extracranial arteriovenous malformations: natural progression and recurrence after treatment

2010

CLOVES and phlebectasia - increased risk of pulmonary embolism

2010

An early description of CLOVES

12-2009

CLOVES Syndrome 12-12-2009 described by Dr Alomari

10-2009

Clinical Trial Assessing Efficacy and Safety of the mTOR Inhibitor Sirolimus in the Treatment of Complicated Vascular Anomalies - Completion date 2013

4-2009

Pharmacological treatment of a diffuse arteriovenous malformation of the upper extremity in a child

10-2008

CLOVE(S) syndrome-expanding the acronym

10-2008

CLOVES Syndrome - CNS Malformations and Seizures

6-2008

Percutaneous sclerotherapy of lymphatic malformations with doxycycline.

2008

CLOVES Syndrome - Clinical Dysmorphology -18 Cases

4-2007

The spectrum of vascular anomalies in patients with PTEN mutations: implications for diagnosis and management.

2007

CLOVE Syndrome seen in 7 patients (7-2007)

2007

Cutaneous Manifestations of CLOVES Syndrome

 FOUNDATION DOCUMENTS

CLOVES Brochure