ABOUT US

The CLOVES Syndrome Foundation was established by Adrienne and Chris Blankenship to help improve the life of our daughter, Emaleigh, and other CLOVES patients by raising money for research of this extremely rare progressive disorder. Our foundation is committed to raising public awareness and providing member support by offering educational literature and resources while also establishing support networks within the medical and overgrowth communities. CLOVES syndrome has many symptoms and variations. The more we learn, the better the future will be for these patients, children, loved ones. This condition affects approximately 200 people worldwide.
Officers
President: Adrienne Blankenship

Board of Directors
Adrienne Blankenship
Chris Blankenship
Virginia (Jeny) Hayes
Richard Fuisz